Love sailing
Blue skies and palm trees
Florida beaches
Love sailing
Life Changes
After a week trip to camping in Yellowstone with my kids, I started experiencing horrible breathing problems which lead me straight to the hospital for a little mini-mom vaca in the worse way.
Fast forward a year, I finally got to the bottom of my lung issues. My husband and I flew all over the country seeing several different specialists and had multiple of tests done. I am officially diagnosed with Bronchiectasis. We are still trying to determine why I have this lung disease with DNA testing.
Pictured above Kayley, Morgan, Carina and Eddie.
I am only one bad lung infection away from being put on a lung transplant list, so my health is paramount. AND as if that wasn't enough, during my travels and testing, I discovered I am high risk for pancreatic cancer. So, now I have two "high maintenance" organs I have to keep happy and healthy. What does this all mean? I don't like smoking, people who are sick or having to do breathing therapy treatments twice a day.
That brings me to 2019. I have made choices to minimize my exposure to anything that may cause my lungs to get irritated and my pancreas happy. That brings me to this wonderful COVID-19 pandemic. I was in isolation for almost a whole year without leaving my little bubble. Yes, I went outside and on car rides, even tried to go shopping. During this time, my health continues to deteriorate slowly. But, I started trying to keep myself busy with my old habit of video games. Yep, I am a 50+ yr old gamer.
My love for electronics, video games, and being forced into no socialization turned me into a video game streamer! Oh, and an Amazon junkie. That's me! And here I will document some of those moments, and the things I love!
At this point, I am completely dependent on oxygen, which was a big pain in the BUTT! However, I did get some perks. I get to get on the airplane first AND a handicap parking permit.
Looking Forward
Covid update
Well, now that covid is "gone" and we are all back to "normal", I would give you all some more about what is going on with me. My first grandchild was born last year, so now I am officially a very proud grandmother! Your heart opens up in a whole new way. I spend my days lately watching her and the amazing things she does. She is into just about everything keeping me on my toes. So, I have started crocheting and watching Bluey none stop! lol
As for my health, I continue to struggle with my lungs. I did get covid, but thankfully it was extremely mild and didn't do any damage. However, I did get a lung infection last year which took me down and I am still trying to recover. My lungs are slowly giving out. At this point, I am completely dependent on oxygen, which was a big pain in the BUTT! BUT, as you may know, that doesn't slow me down too much.
I am still gaming and even started coding my own video game with an ongoing story. Although, that took a back seat as of now, but not for long.
My Transplant
Continuing my Health Journey
In March of 2024, I embarked on a transformative journey. Accepted to the lung transplant list, I found myself at Northwestern Hospital in Chicago, embracing a new chapter. Despite complications and a 100-day hospital stay, my resilience grew. I was re-born from this experience, a sanctuary for healing and well-being. I invite you to join me on a path of empowerment and renewal.
Recovering - The long journey
After my hospital adventure, I've hit a few bumps in the road! Last winter, I lost all my strength and found myself back in physical therapy for round two. Let tell you, it's quite the challenge when climbing just four steps feels like scaling a mountain! But hey, every step counts, right
more to come....
